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Travelling can still be part of life after a dementia diagnosis. With thoughtful preparation and simple adjustments, persons living with dementia, and their caregivers can continue to enjoy the excitement and joy of a well-deserved holiday. Whether you are revisiting a favourite destination or discovering a new place together, read on for practical tips to help create a smooth and memorable journey for both persons living with dementia and caregivers.
This article also features practical tips and insights from Maya, a passionate traveller and caregiver to her husband, Din, who lives with mild dementia.
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Before Travelling
Discuss Travel Interest and Comfort Levels
Before making any travel arrangements, it is important to have an open conversation with your loved one living with dementia on how they feel about travelling. This discussion can help you gauge their comfort level and address any concerns they may have about new environments or potential anxieties.
By taking the time to understand their feelings, you can make informed decisions that prioritise their well-being and create a more enjoyable travel experience for both of you.
Consider asking your loved one these questions:
- How do you feel about going on a trip?
- Is there a particular place you would like to visit?
- Would you like to visit a familiar place or try somewhere new?
- Are there any activities you would like to do during the trip?
- Is there anything else you would like me to keep in mind while we travel?
Plan Ahead
After you have both agreed on the decision to travel, it is essential to start planning. Keep the following aspects in mind to ensure a smooth journey:
Choose locations that feel manageable, familiar, or supportive. It is best to avoid overly- crowded or highly- stimulating environments, such as night markets, that might cause distress. Exploring new places can be a rewarding experience, especially when it is thoughtfully planned. Take time to research areas that are accessible, with convenient transport options and necessary amenities to make the journey easier for both you and your loved one.
Select the most comfortable and accessible mode of travel. Some might prefer shorter journeys or direct routes to minimise confusion and anxiety. Additionally, opting for straightforward travel options and avoiding complicated connections can help make the journey more manageable and less stressful.
Make sure you have all the necessary travel documents, such as passports, medical records, and emergency contacts with you.
Consult a healthcare professional to confirm that the person living with dementia is fit to travel. They might provide specific advice on necessary vaccinations, medications, and any special considerations for the trip.
Maya's Tips
• Purchase travel insurance that covers pre-existing conditions.
• Travel with someone or a group of people who understand your loved one’s condition and can assist if needed.
Packing Essentials
Pack a bag of essentials to ensure comfort and minimise anxiety. Consider including:
- Medications, with an extra supply if needed
- Comfort items, like a favourite blanket or photo
- A memory aid, like a written itinerary or visual guide of the trip
- A list of emergency contacts and any relevant medical details
Maya's Tips
• Make multiple copies of a formal medical letter or memo from your loved one’s doctor to present during immigration or security checks. This letter can help explain the condition and facilitate special accommodations, such as remaining seated during border crossings.
• Prepare a comprehensive list of all prescribed medications, including dosages and schedules. Include both generic and brand names for easy sourcing when needed.
Whilst Travelling
Keeping your loved one updated on where you are going and what you will be doing can help them stay oriented and feel secure. Visual aids or a simple written itinerary with photos can be helpful for reference during the trip.
Maintaining routines around mealtimes, bedtimes, and medication schedules can reduce stress and provide a sense of stability. Bring along any items that support these routines, such as a travel-sized alarm clock and a pill organiser.
Busy or noisy places like airports can be unsettling. If you are travelling by plane, noise-cancelling headphones and familiar music can help provide comfort to your loved one living with dementia.
When planning activities during the trip, it is important to choose those that match your loved one’s interests and abilities. Consider these key factors to make the activities enjoyable.
Maya's Tips
• If you are on a flight, check with the cabin crew about accessible toilets or facilities for persons with special needs.
• Upon arrival, locate the nearest hospital or clinic to your accommodation to ensure you are prepared in case of an emergency.
• Take time to familiarise yourself with the area and transport options. For example, during her trip to Holland, Maya sat at the train station to assess whether it was suitable for Din, who uses a wheelchair.
• Keep your loved one informed during the journey by showing them photos or reminding them of past visits to familiar places.
• Try to maintain familiar routines. For instance, Din enjoys crossword puzzles and reading the Quran on a tablet, which Maya tries to include during their travels.
Conclusion
Travelling with dementia requires extra consideration, but it can still be rewarding and enriching. With open communication, careful planning, and adaptability, persons with dementia and their caregivers can make meaningful memories together while keeping comfort and safety in mind.
